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continued...
Davis
was diagnosed with cystic fibrosis (CF) as an infant. But she's
learned that playing water polo is helping her in the fight against
the genetic disease because exercise is among the treatments for
CF, which primarily causes the lungs to be clogged with mucous
-- damaging them and increasing her susceptibility to illness.
"They
(her doctors) are very happy about that because it can improve
my lungs -- they've always said I should be really active," said
Davis, a Grade 9 Kelvin High School student. "Exercise helps me
cough and spit stuff out and the more mucous I get out, the better
for my lungs."
Davis's
active lifestyle and daily therapy statistically increase her
chances of a longer, healthier life. She started playing water
polo for fun at age 9 with her friends at the Bushido Water Polo
Club. As she has grown, so has her grasp of the physical benefits.
"She
understands what happens if her lungs don't work," said Conrad,
Claire's dad. "If she maintains her level (of activity and treatment),
her lungs are going to deteriorate no matter what, from scarring
and the tissue losing its elasticity as she gets older.
"But
if she had a very sedentary life, she would incur more damage
because her lungs weren't cleared out enough. There's a big difference
if she can keep her lungs clear and keep mucous out as much as
possible, like with an extreme cardiovascular sport."
Claire's
lung capacity is much less than other players on Bushido's competitive
cadet (16-and-under) girls team.
"I
really like playing but when we're practising or we're doing a
lot of swimming (in a game), I get short of breath and it gets
harder to breathe," Claire said. "When that happens, I push harder.
Sometimes I'll slow down a bit but I get going again right away
because I try not to let that affect me."
Claire's
coach, Dave Hill, said her development matches others her age
and has earned the admiration of all around her.
"When
you play a game that's an hour long, in the water for 10 or 12
minutes at a time without a break -- I know how hard it is, I
played water polo," Hill said. "How someone can do that with an
affliction that interferes with breathing, interferes with respiration,
interferes with nutrition, it's so physically hard to do and I
can't believe she does it.
"But
she does it, without complaining, and she's right in there. In
a game, she's like anyone else. It boggles my mind."
Claire
usually wakes up at 6 a.m. for physical therapy to expel the mucous
clogging her lungs, which can often take an hour to complete and
requires a parent's help. She inhales antibiotics through a nebulizer
twice a day every second month. Every three months, she has a
pulmonary function test to monitor her lung condition.
When
she travels with her team, she has to wake up at least an hour
before everyone else to complete her physical therapy.
"I'm
used to it, I guess," she said. "Sometimes I feel upset about
having to do all this stuff, and I'm like, 'Oh, my life sucks'
and everything. But I go through with it and I try to think about
better things and all the great things I have in my life."
She
has her sights set on studying fashion design at Toronto's Ryerson
University.
In
the meantime, Hill said Claire's battle carries a life lesson
about participation in sport.
"I
hope that kids who don't try things because they feel they can't
be on the Olympic podium think about it again. Maybe you can do
an activity without standing on an Olympic podium. That's not
the goal for everyone.
"Claire
could maybe open some peoples' eyes to that, in any sport."
ashley.prest@freepress.mb.ca
Living
with CF presents serious obstacles
What
is cystic fibrosis?
*
Fatal genetic disease affecting mainly lungs and digestive system.
*
Causes buildup of thick mucous and difficulty in clearing bacteria
in lungs.
*
Leads to cycles of infection and inflammation that damage lung
tissue.
*
Causes thick mucous that blocks ducts in pancreas.
*
Results in extreme difficulty in digesting food and absorbing
nutrients.
Who
gets it?
*
People are born with it.
*
It is carried by people with a defective version of a gene.
*
Carriers do not have CF, cannot get CF and usually don't know
they are carriers.
*
Approximately 3,400 Canadians, including about 100 Manitobans,
are living with CF.
What
are signs and symptoms?
*
Difficulty breathing.
*
Constant cough, expelling thick mucous.
*
Excessive appetite with weight loss.
*
Bowel disturbances.
*
Repeated or prolonged bouts of pneumonia.
*
Failure to thrive.
What
treatment is there?
*
Demanding daily physical therapy of "tapping" or "clapping" the
chest and back vigorously (percussion) or PEP (positive expiratory
pressure) Mask Therapy to help loosen mucous clogging the lungs.
*
Daily oral intake of artificial enzymes (average 20 pills per
day) to assist in absorption of nutrients.
*
Daily intake of vitamins and nutritional supplements and antibiotics
to fight lung infection.
*
Exercise.
What
does the future hold?
*
There is no cure for CF.
*
In 1960 when the Canadian Cystic Fibrosis Foundation was founded,
a child born with CF rarely lived four years.
*
In 1989, Canadian researchers discovered the gene responsible
for CF.
*
With research and comprehensive treatment programs, 47 per cent
of all Canadians with CF are over the age of 18 years.
Source:
Canadian Cystic Fibrosis Foundation website: www.cysticfibrosis.ca
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